Insightful Moments: My VIBE

Independence and Assistance with Ben and Ryan

Episode Summary

Host Paula Orandash speaks with Ben and Ryan, who have Duchenne Muscular Dystrophy, about how they receive assistance and maintain their independence.

Episode Notes

Welcome back to another episode of Insightful Moments: My VIBE, presented by PTC Therapeutics. Recently we visited the 28th Annual PPMD conference for physicians, caregivers, and families affected by Duchenne Muscular Dystrophy. In this episode, Paula Orandash speaks with guests Ben and Ryan about how they learned to build up and maintain their independence, even when that meant learning to ask for a helping hand. First, you’ll hear from Ben, who gets a ton of assistance from his service dog Davina. Next, Paula chats with Ryan, who is a Doctor of Psychology, an Eagle Scout, a published author, and was diagnosed with DMD when he was only four. Ryan tells us about his quest for independence and how he helps others find their independence as well.

For more information, visit the Insightful Moments website at www.PTCinsightfulmoments.com.

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