Paula Orandash speaks with Linda and Kendall to learn more about their experiences living with PKU and searching for normalcy.
Welcome back to another episode of Insightful Moments: My VIBE, presented by PTC Therapeutics. In this episode, Paula Orandash attended the National PKU Alliance Challenge the Summit 2022 Conference in Vancouver where she spoke to many individuals affected by Phenylketonuria (PKU). PKU affects the body’s ability to metabolize proteins. It requires a strict monitoring of diet, but has many other challenges and nuances for those diagnosed with PKU and their loved ones. You’ll hear from Linda about how she’s struggled to explain PKU to peers, and how access to medical nutrition has changed over time. You’ll also hear from Kendall, who discusses his experiences participating in clinical trials, in addition to how he’s coped with his search for normalcy and inclusion. Join us for another wonderful episode of Insightful Moments: My VIBE, brought to you by PTC Therapeutics.
For more information, visit the Insightful Moments website at www.PTCinsightfulmoments.com.
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